Often cauda equina syndrome leaves people with a mixed bag of permanent issues, similar to the Red flags that remain after surgery.
Many of the permanent issues CES patients face cannot be seen and people appear “normal” in function and ability. Unlike people who rely on mobility aids and wheelchairs a cauda equina patient may find it hard to communicate to family members and loved ones about the struggles they are facing every day.
“What do I say?” is a poem that was written by our charity ambassador Catrina Farnell and gives a powerful insight about how it feels to be someone living with an invisible disability.